#HCSM TweetChat Recap 8/16/09: T2 Social Media Tools For Patients

Here is the summary for Topic 2 (of 5) from the Health Care and Social Media chat on August 16th, 2009 on Twitter.

53 people joined the chat with 636 tweets about #HCSM (134 were Re-tweets)

@tstitt moderated this night’s chat and provided this pre-briefing.

Anything retweeted 2x or more gets a bold and italics treatment- Minimal editing done for clarity. The info for the whole chat is split into three posts by topic

Here are all the topics for the night. The other three topics are highlighted in the linked posts.

T1 From a provider perspective, which social media Tools, Messages and Services are important now, next year & why?

T2 From a patient perspective, which Social Media Tools, Messages and Services are important now, next year & why?

T3 From a physician perspective, which social media Tools, Messages and Services are important now, next year & why?

T4 From a payor perspective, which which Social Media Tools, Messages and Services are important now, next year & why?

T5 From a pharma perspective, which which Social Media Tools, Messages and Services are important now, next year & why?

Here are the best tweets (IMHO) for TOPIC 2 – From a patient perspective, which Social Media Tools, Messages and Services are important now, next year & why?

DaphneLeigh: I want to be able to use the tools I want to use, when I want to use them and where I want to use them. RTx5

hillarts: From my perspective the issue is valuable content and programs, not tools RTx2

hillarts Put good content out there. You’ll be surprised how many people are out there RTx3

stales i’d like to see more focus on preventative care addresses by hospitals via groups/communities for wellness/health RTx3

myhealthsocial: SM tools that allow patients to socialize around health is important in terms of providing & seeking help RTx3

stephaniethum I really think the emerging, valued SM tool from patient’s perspective will be attached to EMR/EHRs. RTx4

nickdawsonhc @stephaniethum but will it be social? if so how?

AccessCR Not sure I agree

ctsinclair would love to see SM in EMR’s

danielg280: @accesscr electronic access to their own emr info does not violate hipaa (its what hipaa was enacted to do)

AccessCR @ctsinclair I agree re EMRs and providers. However discussed last night with husband, and he was horrified about potential for misuse

ahier Social media provides great opportunity from patient perspective for community building RTx1

healthblawg Tools include gated communities, incl a new one to educate fam prac docs re med home; blogged abt this last wk

chimoose I think that patients are going to be doing more and more private, condition-based networks to help each other out (eg Ning) http://bit.ly/1e5dna RTx3

RickenFlow #hcsm being a patient myself networking is important not being stuck on using just one source is important

AccessCR For me as a pt, SM gives option to get more info from drs/community I wouldn’t normally get access to

RickenFlow #hcsm using the right app for the right communication Second Life for me is the most important immersive global education and support

cyberslate @RickenFlow Second Life already in testing for online therapy – for behavioral sciences, social media/online access reduces stigma

AccessCR Online forums I think currently most useful. Blogs still too one way in many cases, & twitter noisy. Never used Second Life.

MeredithGould @RickenFlow Glad you mentioned Second Life. Lots of possibilities there.

ctsinclair RT @MeredithGould: @RickenFlow Second Life. Lots of possibilities there. “Really. I am an early adopter, but SL I don’t get.”

chimoose Also see more games (esp. mobile) powered by biometrics – aka games for health – as “big” for patients (aka “normal ppl”)

mkmackey I have seen more mobile applications directed to wellness and education recently

qeanmedical Curious what people think – do providers and practitioners feel threatened by the lack of control in SM?

ctsinclair RT @qeanmedical: T2: do providers and practitioners feel threatened by the lack of control in SM? “A strong yes”

marciamarcia @ctsinclair @qeanmedical The sad fact is their control before SM is only mythical.

stephaniethum @chimoose You hit on an important component that we sometimes overlook–mobile.

cyberslate online support groups – both consumer-driven and provider driven. good for underserved pops – see

cyberslate providers, like patients, have different relationships with technology – some embrace it – see http://t2health.org/http://www.hystersisters.com/

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Feel free to comment or blog about these tweets or join us in Tweetchat on Sunday nights.

Tagged as: Facebook, FriendFeed, Hospital, Medicine, Ning, Online Communities, patient, Second Life, Social media, Twitter